Tuesday, December 31, 2013
Tuesdays with Naqvi--Herceptin#35
Tuesday, December 24, 2013
Tuesdays with Naqvi--Herceptin #34
And Joseph also went up from Galilee, out of the city of Nazareth, into Judæa, unto the city of David, which is called Bethlehem...to be taxed with Mary his espoused wife, being great with child. And so it was, that, while they were there, the days were accomplished that she should be delivered. {Luke 2:4-6}
We know that Joseph and Mary made a long journey, but we don't know for sure which road they took from Nazareth to Bethlehem. We don't know if they walked or rode, or if Joseph walked, pulling a very pregnant Mary on a donkey, or could it have been a camel? We don't know if the couple traveled alone or in a caravan. What we do know is that they made the journey, which was close to 100 miles and probably took 4-5 days. Questions arise of where they stayed along the way or did the journey take them longer than it might normally take because of Mary's condition? Although this type of travel was most likely unpleasant for Mary, being "great with child," she probably was not in labor, on a donkey, in the cold of winter, on an unfamiliar road, barely making it to town, dilated and ready to go. In the bibilical account it says, "while they were there, the days were accomplished that she should be delivered." Jospeh and Mary made it to Bethlehem and stayed long enough for the birth of her baby. We are not told how long this took--maybe a few days, maybe weeks. We are not told where they stayed for these "days," only that "she brought forth her firstborn son, and wrapped him in swaddling clothes, and laid him in a manger; because there was no room for them in the inn." {Luke 2:7} Was the inn like a hotel of modern times? Or was it more like today when all the children/grandchildren/aunts/uncles of different families go back to their hometowns over holidays, and someone gets stuck sleeping on an air-up mattress in the dining room? Maybe the best guest quarters Joseph and Mary could find was more like today's pull-out couch in the living room, not a suitable place to give birth. They possibly retreated to the stable out back, so as not to wake the entire house during that painful process.
There are many details the scriptures leave out of this story. How in the world did these two, young, probably scared, inspiring people endure this process? I have been "great with child" 3 times, and there's a reason doctors tell you not to travel that late in the game. I cannot imagine having to walk over rocky, dirty, dusty terrain, or ride on a dirty, smelly donkey--or camel--almost 100 miles in that condition. I don't even want to have to think about sleeping on the side of the road in the middle of the wilderness while on that journey, in fear of bandits, having only the food and supplies we'd carried on a donkey---or camel--but had to ration for the entire trip. {I'm sure I didn't even want to take a road trip in a climate controlled vehicle, with the ability to make stops at restaurants, and a comfy bed to sleep in upon arrival.} Mary had probably already had to endure some gossip/anger/questioning from family members and acquaintances about this whole pregnancy thing, since she was only Joseph's espoused wife and still--somehow--great with child. Then, the couple arrived in Behtlehem after an arduous travel exprience, probably having to explain the story to family there. {"What? You're pregnant? We haven't had a wedding yet! Is it yours, Joseph? Oh, *I see,* you're still a virgin and this baby is *special.* Uh-huh.} The stable was probably a welcome reprieve from scoffs and those who might not have understood.
While they were there, the days were accomplished, and it was finally time for Jesus to be born. After that long, uncomfortable, tiring journey, with days of uncomfortable, not-restful sleep, Mary then had to endure labor--not in the clean, comfortable, modern birthing rooms of hospitals of today, with plenty of trained medical personnel by her side, but in a place away from her home, wherever they were staying when there was no room for them at the inn. I know women give birth naturally all the time, but I quite enjoyed letting an epidural remove the pain from the situation. I can't imagine having to do all that Mary did after all she'd already been through. Maybe she had someone other than Joseph to assist in the birth...maybe not. Maybe she was warm enough....maybe not. Maybe there was enough light to see what was happening...maybe not. Maybe she had been able to catch up on her sleep after the uncomfortable journey....maybe not. We do know that after all that traveling, all that exhaustion, all that pain, all of that unsurety of where they would stay and how they would possible be able to do this thing, she brought forth that holy child and wrapped him in swaddling clothes and laid him in a manger. In that one moment, all the suffering and exhaustion and pain and fear and questioning and anxiety became peace, joy, love, happiness, light, charity, miracles, and the greatest gift ever given.
When I think of all the suffering, frustration, heartache, the fear of the unknown, the hard work, the exhaustion, and the pain Mary {and Joseph} experienced in the time leading up to Jesus' birth, I can't help relating it, in a small way, to the times when we experience trials, heartache, or suffering. While in the midst of a difficult time, we might only feel the pain, see the sadness, and experience the difficulty of walking the dirty, rocky, uneven roads. At some point, however, our suffering ceases, our pain subsides, our sadness lifts, and the unbearable parts of our trials are removed. There might not be angels singing at that moment, but if we look hard enough, we can see the light, the blessings, the peace and joy and happiness that comes from experiencing something difficult and making it through to the other side. This is my hope, what keeps me going on this long, trying path.
One of my favorite parts of the story of Jesus' birth is near the end. Although choirs of angels sang out and shared the great tidings and shepherds spread the word around, "Mary kept all these things, and pondered them in her heart." She had been through hell and back and was also blessed beyond what her words could express. At times when we experience some of the most dificult trials in our lives, we are often also buoyed up by the love and blessings of those around us and of our Savior, whose birth we celebrate tomorrow. I have felt that this year. Although I would gladly send angels to sing praises to all who have lifted us up, I will ponder this time always and keep the lessons I've learned near and dear to my heart.
Tuesday, December 17, 2013
Tuesdays with Naqvi--Herceptin #33
Wednesday, December 11, 2013
Day After Herceptin
I look back on the year and wonder how we were able to make it this far. It was definitely NOT on our own. I've had more help than I can list here--family and friends coming to stay and take over when I couldn't get out of bed. There have been helpers making dinners, doing shopping, cleaning my home, babysitting the boys, helping the boys get to and from school, and babysitting the boys some more. The list of service goes on and on, and I doubt we would have been able to function without it. Having young children and cancer is not easy. Not one bit. I'm sick and in pain and have "boo-boos" of my own, so I'm compromised in fixing my boys' pains. My patience level--already something I struggled with--is now even lower because I'm tired and rundown. Not being able to lift and hold my children, race them through the park, and be a "normal" mom of little children is beyond frustrating. I hope they know and feel that I love them, even though I'm different than I used to be.
Most people have high expectations for themselves, and women especially seem to want to juggle and balance many facets of life, all at the same time. I am no different in that I want to be able to "do it all," but this disease and the treatment for it slows me down. I'm better now than I've been at earlier points in the process--better at both allowing myself to NOT do some things AND feeling better to be able to do many of the things I want to do. This time of year and all the fun events make it even more tempting to push the limits. I'm feeling the effects of that pushing too hard today. Staying up way too late to go to a Christmas party the same day probably doesn't help, either.
Now that the treatment process is easier than it has been, it's easy to forget, to almost pretend that none of it exists.....until I can't lift my arms to change a light bulb or have to use a shovel to push open the garage door because getting it to reach the top is out of my range of motion. I even think I'm a "regular" mom, until another Tuesday rolls around, and I have to find someone to watch my babies while I sit in the oncologist's chair again. Having children and cancer is difficult and frustrating, but my children are also a huge motivator to not give up, to stay strong. I have many reasons to get up everyday, to keep on fighting, and to keep trying to live up to my own expectations--and the most important of those reasons all live under the same roof.
Monday, December 9, 2013
Tuesdays with Naqvi--Herceptin #32
Another countdown is on in our household: the countdown to Christmas. I absolutely love this time of year. I love the spirit of Christmas, the celebration of the birth of Jesus Christ, the love and brotherly kindness that seems to flow more generously, reflection at the close of one year and the rebirth of another, the traditions, the parties, the giving, the decorations, and all the joy and magic of the holiday. I love blending the traditions of the families in which Stephen and I both grew up and making new traditions and memories in our own family. I enjoy seeing how other families celebrate and getting to share ideas to spread the love of Christ, which is the reason for the season. Even those who don't share our faith usually have some traditions and celebrations that occur around this time, so it's interesting to see how others commemorate the close of another year. I don't know all of the traditions that you celebrate, but in our house, it's "Merry Christmas!"
I truly believe that all things testify of Christ. If our eyes are open to see and our hearts are open to feel the spririt, we can see signs everywhere, even more so at Christmastime. We celebrate His humble birth, but also His selfless and giving life, the willin sacrifice of His death, and that He lives again, eternaly. In all things, He gave us a pathway to follow.
When Jesus walked on the earth, He taught in parables, stories that teach great truth using comparisons or symbols. There are probably many reasons why He did this--perhaps to keep some truth hidden from those not ready to hear it, to make difficult things more easy to understand, or to encourage those who are seeking to study the matter even more. Howard W. Hunter said: “{parables} are so simple a child can understand, yet profound enough for the sage and philosopher. In Jesus' own words, He described his use of parables:
Matthew 13: 13-15: Therefore speak I to them in parables: because they seeing see not; and hearing they hear not, neither do they understand. And in them is fulfilled the prophecy of Esaias, which saith, By hearing ye shall hear, and shall not understand; and seeing ye shall see, and shall not perceive: For this people’s heart is waxed gross, and their ears are dull of hearing, and their eyes they have closed; lest at any time they should see with their eyes, and hear with their ears, and should understand with their heart, and should be converted, and I should heal them.
Sometimes people see things without seeing them and hear without truly hearing. When are hearts are hardened, we don't allow ourselves to grasp the true meaning that all things testify of Christ.
Jeremiah 10:2-4Thus saith the Lord, Learn not the way of the heathen, and be not dismayed at the signs of heaven; for the heathen are dismayed at them. For the customs of the people are vain: for one cutteth a tree out of the forest, the work of the hands of the workman, with the axe. They deck it with silver and with gold; they fasten it with nails and with hammers, that it move not.
Santa wears red
Christ wears red (Isaiah 63:2)
Santa has white hair
Christ has white hair (Revelations 1:14)
Santa comes in the night
Christ came in the night (1 Thessalonians 5:2)
Santa loves little children
Christ loves little children (Matthew 19:14)
Santa wants us to be good
Christ knows we are good (1 Timothy 2:3-4)
Santa brings us gifts
Christ brings us gifts (James 1:17)
My favorite part of the book pretty much sums up most of my Parables of Christmas, and she tells this part of the parable so much better than I could. She says that "Santa is a symbol of Christmas. Symbols of Christmas can remind us of the true meaning of Christmas. The symbols of Christmas remind me of Christ. So I believe in Santa Claus." {In my opinion, you could pretty much insert: "So, I believe in _______ whatever symbol of Christmas there.}If we are keeping with Santa Claus as a parallel for Christ, it makes sense that this "magic" of Christmas is taught in a parable. Although little children are often the most pure and innocent, they don't always easily grasp the faith and understanding to "know" Jesus. They can't see or touch him. But, they can learn about a loving man {Santa} who expects them to be good and brings them gifts {blessings} for doing so. They can't quite grasp heaven and how far away it is, but they can understand it a little better as related to The Parable of the North Pole. They can dream and hope, as in stories like The Polar Express of when they can return to that wonderful, beautiful, "magical" place, where that loving man lives. {That sounds a little like a piece of heaven to me.} Maybe learning about how Santa is able to reach all the children of the earth in one night can help them understand how a loving Heavenly Father is able to know all of His children, all over the world, at once, that he can enter our hearts and our homes and fill them with blessings. I seem to remember something in The Parable of the Reindeer about Rudolph, one who was different and cast out from his peers but ended up having a special mission that saved them all. That story sounds somewhat familiar, almost as if it could be used as a way to teach about Jesus. Perhaps many parts of the Parable of Santa Claus can turn into ways to point to Christ and to His teachings of love, obedience, and sacrifce.
When Jesus was on the earth, he called disciples to help him. Even though God is all-knowing and all-powerful, he still calls servants to help with His work on the earth and return and report. Maybe, just maybe, The Parable of The Elf on the Shelf is a little like that? There is SO much controversy about this lately! If you truly read the story and understand its simple meaning, you'll see that the elves are just Santa's helpers that are sent to each home to help him in his work. They return each night to the North Pole to report, then head back to their assigned homes, waiting to be found. There were messengers sent before Jesus many times to prepare the way and to give people signs of his coming, and remind them that the time was soon at hand. Maybe, if our eyes are open to see, something the could be turned into a vain custom could actually be yet another parable of Christmas. I'll admit that this tradition has gotten a little out of control, especially from crazy, Pinterest one-uppers, and the case could be made {in my opinion} that something like this could be taken a bit of a heathen custom. But, can't the same argument be made for many of The Parables of Christmas? If it is something that helps us remember the Spirit of Christmas, it can bring joy and help to celebrate the love and anticipation of the season.
Remember what I said about parables from earlier? : 1} A parable can be used as a tool to reach us all--from young children all the way up to those in the wise, older years of life. 2} We can sometimes have dull ears, closed eyes, and hardened hearts and miss precious truths. 3} There is more than one way to apply the principles of parables. 4} Parables may or may not be based on actual events. 5}Parables might have been told a little differently in each family.
It came without packages, boxes, or bags!"
He puzzled and puzzed till his puzzler was sore.
Then the Grinch thought of something he hadn't before.
Maybe Christmas, he thought, doesn't come from a store.
Maybe Christmas, perhaps, means a little bit more!"
Tuesday, December 3, 2013
Tuesdays with Naqvi--Herceptin #31
It's the Most *Wonderful* Time of the Year {AKA: Worse.Apocalypse.Ever}
2} Kyle pees on his sheets. Yes, the ones I'd JUST changed the day before.
3} We rush out the door to get Kyle to school and then go to the doctor with 2 sick boys = FUN for all in the BUSY sick children/school holiday/last day before holiday closing rush.
4} Evan has a double ear infection and is, shall we say, more tired and irritable than normal. Of course our medicine isn't ready at Walgreens, even 37 minutes after leaving the doctor's office. How long does it take to slap a label on a bottle and shake up some amoxicillin? It won't be ready for another 2 hours? Great.
5} We "get" to "help" out at Kyle's Christmas party at school. It was more of me trying to keep things together. And water spills on my camera.
6} Ryan says he has to go poop before naptime, but tries and doesn't. When Kyle goes to wake him up from naptime....LATE in the day...he runs out screaming, "GROSS! POOP! There's poop EVERYWHERE!"
{Mom runs upstairs and LOSES it.}
There really is poop everywhere: all over Ryan: down his legs, on his arms, under his fingernails. He pooped in his pants, removed them, got poop all over him/the floor--caked in in three major spots, his dresser, his sheets--Yes, the ones I just changed the day before--the dust ruffle, a pillow that was still waiting a fresh pillowcase, the walls, and the door. I was NOT happy. I'm sure some day I'll think back on this and laugh, but today is NOT that day. It was beyond disgusting, and I think it was for something very much like this that the phrase, "$h*t hit the fan" was invented. Good news: I didn't have to make dinner and Stephen went to pick it up!
7} The next morning, the boys seem to be constantly vacillating between playing, fighting, hurting each other, laughing, and crying.
8} We have time-outs in the first 20 minutes of the morning.
9} I attempt a trip to Target with all 3 boys--my *favorite*--to replace the busted straightener and to buy more cleaning supplies because Ryan's room still smells like poop and end up with a headache and reach frustration level from just trying to keep it together. {And, of course, we run into half our neighborhood, people from church, one of Kyle's teachers, and a friend from school, and I'm in NO mood to socialize.}
10} I spend the whole day disinfecting the house, re-cleaning bathrooms from the poop incident, continuing to wash everything from Ryan's room, and attempting to clean and clear the room from remnants of excrement.
11} As I finish vacuuming up the carpet freshener, Evan comes up and pushes the vacuum over. It falls directly onto the collection of pictures that I still need to hang in the upstairs hallway, smashing 2 frames into a million pieces. I then get to clean up glass shards from the carpet and dispose of 2 {not cheap} 11 X 14 frames.
12} I come downstairs after cleaning up this mess to discover Ryan covered in chocolate. He took the end of the world talk a little too seriously and decided to climb up on the counter, grab his chocolate advent calendar, open all the remaining days, and snack down on the chocolate. Kyle was not pleased and chastised Ryan for me. "PO! You are NOT supposed to do that! What have you done? You're ONLY supposed to eat ONE chocolate a day! Now what are you going to do until Christmas?!"
13} The boys play outside while I make dinner. We eat quickly and *amazingly* it was bath time! Everyone was clean and I got Evan out, dressed, and dosed with his medicine. I run upstairs to get PJs for PO. When I go back into the bathroom, I find that Evan had gone in there, cleaned out the bottom drawer, and thrown the contents INTO THE BATH WATER. Did I mention that my BRAND NEW STRAIGHTENER was in the bottom drawer?!? Game, set, and match, boys. You broke me.
Kyle's commentary: "Mom, maybe you shouldn't have had 3 babies. Evan is very bad. You maybe just should've had me and Ryan. Then it wouldn't be so hard."
Good news: Not long after that, it was bedtime, and I escaped to a fun Christmas party. And, I got to come home and sleep in my nice, warm bed, knowing that Stephen was home the next day--my reinforcement would be there all day long. I would not have to fight the day-after the end of the world battle alone.
Saturday, November 30, 2013
Breast Cancer Portraits--Scars and Healing
One of the most difficult parts of this session was trying to capture this part in the journey. The scars and loss are more than just skin deep. It's also been quite eye-opening to actually experience just how much goes into the surgery.
When I came home from the hospital in August, I looked a little something like this:
I was cut from hip to hip, stitched back together, had both breasts completely removed of their former tissue. The original breast skin was used to house tissue harvested from my abdomen, closed by the circular "flaps," skin grafts from my abdomen, which replaced the areas where my nipples were removed. A new belly button was completely constructed, and I had tubes and drains coming out of {what seemed like} everywhere. It was a scary looking {and feeling} time. I was only somewhat prepared for the magnitude of it all. I was swollen, unable to move or use most of my body how I wanted, feeling down about the intensity of the changes, and in a good amount of pain.
2 weeks after surgery, I'd had the stitches removed, and all the drains were ready to come out. I was feeling great about the progress. Sometimes when I start feeling too well, I overdo things a bit. In one, small twisting move to reach for something on a side table, something that was so "normal" before all of this, I popped open my abdominal scar in three spots. I felt like it looked terrible--and the sound of the bust alone made my stomach spin a bit--but my doctor assured me that things like this are fairly common, and I didn't have to come in. I just needed to give myself more time to heal.
A month after surgery, things were improving. The scars were healing, the swelling was going down, and the pain was vastly decreasing.
People are often curious about how the reconstruction works. In the first stages, the flap of skin that holds in the new tissue is skin borrowed from another part of the body. This is how it was healing up at my 6-week appointment. I found it somewhat meaningful that the skin used for the flaps had stretch marks I'd acquired from pregnancy. In some, small way it reminded me of my 3 precious babies, some of the most important reasons I was going through all of this.
Before I went through the second stage of the reconstruction, which has completely changed the scars, both in how they look and how I feel about them, I wanted to document the huge circles and scar tissue, but how amazingly the body can heal in such a short time.
Two months after surgery:
After posing and recording the scars, talking about the process and the healing, I started to feel like I was seeing some of my strength return. Loss and scars are real. The healing process is both physical and emotional, but seeing my strength come through the back of the camera was empowering.
We brainstormed and wanted to capture that strength. Through our combined efforts, we envisioned a portrait of a survivor pulling herself out of the hole of sadness and depression, and what better way to pull herself up than with the symbolical pink ribbon?
It was a tough session, but exactly what I needed. I think this session was a turning point in my healing, especially in the emotional side of things. It's amazing how something as simple as pictures can help you start to see the light and the strength that can come from the love of others and from within.
Wednesday, November 27, 2013
Wednesday with Naqvi--Herceptin #30
I am often asked something along the lines of, "How are you doing?" Often, my response is something like, "I'm doing okay. We could be better; we could be worse." Sometimes, I even answer, "I'm doing well, all things considered." Don't get me wrong. There is a long list of difficulties I could explain each time someone asks me that "how ya doing?" question. But, I don't want to complain or focus on what's wrong in the world. I would much rather focus on the good. I'm not trying be to fake or cover up how hard 2013 has been for me and my family, but cultivating gratitude, especially in difficult times, helps us grow happiness. "Sucking it up," as Stephen would say, "Not shrinking" in our trials, shifts our focus and helps shed light on all for which we can truly give thanks.
Did you know It is actually a commandment to show gratitude?
Come before his presence with thanksgiving: Ps 95: 1-2
- Be thankful unto him, and bless his name:Ps 100: 1-5
- Cease not to give thanks: Eph. 1:15-16
- Be ye thankful: Col 3:15
- In every thing give thanks: for this is the will of God in Christ Jesus concerning you.: 1 Thes 5:18
- O how you ought to thank your heavenly King: Mosiah 2:19-21
- Live in thanksgiving daily:Alma 34:38
- When thou risest in the morning let thy heart be full of thanks unto God:Alma 37:37
- Ye should do all things with prayer and thanksgiving:D&C 46:7
- Ye must give thanks unto God:D&C 46:32
- Giving thanks is a commandment, a virtue, a spiritual gift, and yet, it often does not come naturally. It must be cultivated and practiced. Gratitude can be learned and strengthened by simply expressing it, focusing on the good over the bad, by serving others, and showing our love. All good things come from God, so our gratitude should being with him. Russel M. Nelson said, "Our degree of gratitude is a measure of our love for Him." How well we keep the commandment of thanksgiving measures our love for our Savior. {Isn't it interesting how much of the world these days skips straight from Halloween into Christmas, with little thought on Thanksgiving, and that little thought often focuses on food and shopping and AWAY from Him from whom all blessing flow?}
Sometimes we have to literally pull ourselves out of those dark places, those sad and depressing moments, or rely on being lifted up by others. It can be done. I am here to tell you that it can be done. Somewhere within each of us lies that strength to turn to the light, to reach for the hands that are yearning to help, or to pull ourselves up by our own bootstraps {or pink ribbons, as the case may be} and keep on going.
Even while still in the midst of a marathon of a trial, or just a sad moment in a day, we can find much for which to be grateful. We can smile and express our thanksgiving to others. We can focus on the positive and all that is good in the world. We can live in a way that encourages others to be more positive about the hard things with which they are silently--or opening--living. “We can lift ourselves, and others as well, when we refuse to remain in the realm of negative thought and cultivate within our hearts an attitude of gratitude. If ingratitude be numbered among the serious sins, then gratitude takes its place among the noblest of virtues." {Monson}
Everyone is dealing with something that is hard. At any given moment, each of us could be sucked into complaining about our lot in life, becoming upset at the unfairness of it all, or succumbing to that dark place where sadness overwhelms and crushes hope, faith, light, and gratitude. Let us not give up on the good. Let us see the hard parts for what they are and let them help us to become even more thankful for our many blessings. President Monson gave us a 3-step process to cultivating this attitude of gratitude. First, express it to Heavenly Father and others. Then, "enact" it. I like to think of this as performing acts of gratitude. Finally, we get to the point where we always live with a spirit of thanksgiving. I love how he explains it. "To express gratitude is gracious and honorable, to enact gratitude is generous and noble, but to live with gratitude ever in our hearts is to touch heaven."
Let heaven touch your heart in the spirit of thanksgiving, and share that spirit with others.