Tuesday, September 24, 2019

Herceptin #SIXTY!!!!

I have been doing this Herceptin thing for over 180 weeks.  
Some days it can be a challenge to stay strong.  After such a positive and encouraging appointment about my heart yesterday, I received the ACTUAL report about said appointment this morning.  I'm pretty sure someone inputs Dr. Raza's notes and my information from vitals and the computer pops out rote information and suggestions.  Well, I was feeling pretty great about my heart being on the mend, and then I found out from this report that I'm "BORDERLINE OBESE"!?? My great feelings took a trip down to not-so-great.  

However, I decided to get out of the mom uniform (t-shirt and yoga pants) and go to chemo a little more fancy today.  Out came the red, curly wig and vivid colored high shoes!





And then I got a headache because it is BLASTED hot outside.  (Thanks, Texas, for that great welcome to fall.....)  I'm assuming that red wig and my attempt to cut out Dr. Pepper for my overweight-borderline obese was also contributing to that headache, so off came the fancy, and on came the Nutter-Butters and a nap. 


Fancy or not, I'm still fighting and living the only life I have.  

Monday, September 23, 2019

Dr. Raza + ECHO

It was a very good appointment today.  

I made a new friend AND my heart made new improvements!

Three months has already passed, so it was time for another ECHO + meeting with my cardiologist.  

I got all dolled up in this amazing gown, open to the front.  



My new buddy, let's call him Randy, is new to the HeartPlace.  He is my kind of person, and brought me joy from the beginning.  (He whispered a number lower than my actual weight on the scale!). Before we began the scan, he stopped everything and said, "Hold on, girl.  I gotta get my Motown goin'!"  He then grooved and sang during the whole thing, which I loved.  We got to know a little about each other.  He is a survivor.  At age 16, he died (asthma attack) for 3 minutes, but was brought back to live his best life every day of whatever he has.  God has a plan for him, just like he does for me.  I chuckled when he asked me if I was a Baby Boomer.  I DID just turn FORTY, but am a baby of Baby Boomers! We laughed again when Randy was putting on my leads and his fist bumped my chin.  I told him, "If you want me to be still, just ask me.  You don't have to knock me out!"  At first, he wasn't sure if I was serious.  "Don't say that out loud!  I don't want to get fired!"  And then we laughed and jammed throughout the whole thing. 


After a quick EKG, Dr. Raza came in.  

GOOD NEWS:  My ejection fraction is improving!!!  I was down to 45% last time, and now I'm almost to 50%. She was so happy with this news that she's downgrading me from a 3-month interval patient to a 6-month one.  That's pretty big news in my book!  


Wednesday, September 18, 2019

Brain MRI Results + Appointment with Dr. Wardak & Crew


Last week I had the easiest MRI experience of my life.  Traffic went smoothly, we chose the correct location the first time (UT Southwestern's downtown complex is, literally, complex), I got in right on time, I was able to wear my *favorite* disposable scrubs + no-slip hospital socks, had the 2nd best IV stick of my life, and the actual scan was quick and painless.  (Shout out to my all FEMALE team for the day!!)



It takes a few days to receive results.  The scans have to be read.  Reports must be dictated and reviewed, then sent to my doctor.  Someone transfers the reports to my online file and to MyChart, online access to my own account information.  These online reports are often confusing because, although I have gained a lot of medical knowledge in the last six years, I haven't quite received my degree in radiation oncology. I've discovered over much experience in PET, CT, MRI, and bone scans that usually the longer the reports and the greater the medical vocabulary, the worse the report.  

This report was short and intelligible, 
especially these highlighted words and phrases!!!  

No areas of abnormal enhancement are seen, with particular focus on the cerebellum.  Enhancement in the bilateral cerebellar hemispheres are unchanged.  The ventricles, sulk, and basal cisterns are normal.  Hydrocephalus or pathological extra-axial or midline shift is not detected
Hemorrhage or diffusion restriction is not evident.  Scattered foci of susceptibility are unchanged from prior imaging and may be related to prior radiation. 
The calvarium and central skull base are normal. 
The paranasal sinuses are clear.  The mastoid air cells are unchanged.   
No areas of abnormal enhancement.  The previously noted cerebellar vermis lesion and right cerebellar hemisphere sessions are no longer seen.    


Miracles keep coming, y'all!!!




I had the actual follow-up appointment with Dr. Wardak and his team to confirm what I was pretty sure was all good news.  

After my vitals, the RN, asked mucho questions.  I was expecting Dr. W next, but was greeted by a colleague.  He pulled up my images and asked and examined, again with mucho questions.  Finally, my actual doctor came in.  I got this feeling like the whole team needed answers to all the questions they could think of.  It was a different feeling than I've had in many moons.  Perhaps this is just what it feels like when you once had cancer and then now are normal.  Perhaps these results make me a bit of an outlier, and these medical professionals are intrigued to know why.  
Is this result too good to be true?  
Why is there not more wrong with her?
She should be in more pain than she claims and in more areas.
How can all this be explained?


It doesn't need to be explained to me as anything but miraculous, unless something I'm doing or some treatment I have received will help another survivor to have results like mine.  

Before (3/19/2017) and After (9/9/2017)
:






The only explanation I need is that with God nothing shall be impossible.

My thought for the week is borrowed:

"While the world is filled with uncertainty, there need not be uncertainty in your heart and mind about what is true and what is not... 
...In a coming day, you will present yourself before the Savior. You will be overwhelmed to the point of tears to be in His holy presence. You will struggle to find words to thank Him for paying for your sins, for forgiving you of any unkindness toward others, for healing you from the injuries and injustices of this life.
You will thank Him for strengthening you to do the impossible, for turning your weaknesses into strengths, and for making it possible for you to live with Him and your family forever. His identity, His Atonement, and His attributes will become personal and real to you."
 
                                    --Russell M. Nelson,  January 8, 2017 





Wednesday, September 4, 2019

Herceptin #59 + Crazy Rash


How grateful I am that this last three weeks didn't require any scans or other doctor appointments.  I needed a break on medical stuff in order to wrap my head around school starting again!  
Next week will be back to tests and labs, but it's been a much needed break.  

The end of summer has been interesting--trying to soak all the free time and joy out of each day. I also turned FORTY, which is actually miraculous.  In January of 2017, my doctors thought I might not even make it six months, and here I am celebrating 40+!  

My doctor and I have pretty much given up on insurance covering Perjeta for me.  The latest excuse is that the drug doesn't work, i.e, it doesn't stop cancer from growing in my body.  WRONG: My body has been cancer free since December 2015, minus my head, "that lump that's three feet above my [backside.]"--movie, anyone?  Perjeta was not able to really keep cancer out of my brain, as IT DOESN'T CROSS THE BLOOD/BRAIN BARRIER!!!!!!!!!!  Herceptin doesn't, either.  But, so far, cancer has been kept at bay through the rest of my body.  What do these "doctors" working for insurance companies know about this, anyway??? 

Dr. Cole is fine just moving forward with Herceptin for now.  She also is always on the lookout for drug trials.  There is one that I fit quite well: Stage IV breast cancer, Her2+.  The one roadblock might be that I need history of Perjeta + the chemo Taxotere or Paclitaxel.  I cannot remember if I have taken them together, and for now I don't have active cancer.  It seems crazy to take strong chemotherapy with no active cancer in my body, just for the opportunity to be accepted for a trial study.  I'll keep looking out for possibilities.  Like I've said for the last few years, "I just need to stay alive long enough for something new to be invented and then take that until something else is invented and soon someone will invent the cure!"   




Keep kickin' cancer to the curb! 






***Added:
Saturday, I did some work in the yard, just pulling weeds and cleaning out some beds.  I woke up on Sunday with a itchy mess of a rash that still hasn't gone away.  Why?  I stop fighting for Perjeta and find that my old allergic reaction (which was probably TO Perjeta) is gone, I just can't go without switching one kind of drama for another!  That reminds me of my grocery order last week.  I wanted tomatoes.  They tried to substitute for artichokes!  What in the world?  Perhaps that's my lot in life.  I will survive cancer, but will have to put up with all kinds of craziness in the process.



Also, just got a call from the school nurse:
The 2nd grader accidentally got stabbed with a pencil behind his ear and has a big, bleeding gash.  No  graphite in there, though!"

It's always something around here.  BTHO Cancer!